"Chloe was born with severe respiratory issues, failure to thrive, low tone and at six weeks developed seizures. After seeing a neurologist we found out that Chloe was born with a condition called agenesis of the corpus callosum (missing the part of the brain that connects the two halves of the brain). This was causing her seizures. After researching her condition we were convinced that it couldn't just be this condition. That her facial features and other slight differences in appearance had to come from something else. It took Chloe refusing to eat and almost dying before we were able to get her true, complete diagnosis, 1p36 Deletion Syndrome. I can't help but wonder if we wouldn't have been able to prevent so many of her issues and illnesses if we would have found out sooner.