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What is 1p36 Deletion Syndrome?

 

1p36 Deletion Syndrome is a chromosome disorder that can be characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every 5,000 to 10,000 births though many individuals still go undiagnosed. Though many people have never heard of 1p36 Deletion Syndrome, it is the one of the most common chromosome deletions. Learn More

Entries in conference (7)

Tuesday
Nov062012

2013 Conference Preview

The Seventh annual 1p36 Deletion Support and Awareness conference will be held in the beautiful city of San Antonio, Texas on Thursday August 1st through Sunday August 4th, 2013. Our family convention is designed for parents, family members, and caregivers. We also encourage physicians, therapists and teachers who want to learn more about 1p36 Deletion Syndrome to attend.  Thursday evening will kick off the meet and greet. It’s a great time where parents, moms, dads, grandparents and siblings will have an informal opportunity to introduce themselves and share their joys, concerns, and strategies with others.  Our family conference is an excellent time to feel connected, share stories, learn lots of information, and simply enjoy each other’s company!

We are super excited to announce that the conference will take place at the Drury Plaza Hotel Riverwalk in San Antonio. For the conference attendees, rooms at the hotel will cost $129.00 plus tax per night and $19.00 for valet parking. You can find parking rates to be cheaper from independent parking structures within walking distance from the hotel. These room prices are also available for check in as early as Monday, July 29th and as late as checkout Tuesday, August 6th for those who would like to come early or stay a bit late to enjoy the beautiful city of San Antonio.

Formerly the Alamo Bank, this 24-story skyscraper was renovated to maintain its historical character while creating modern comfort. The Drury Plaza Riverwalk Hotel stands as Trip Advisor’s top 10 rated hotels in all of San Antonio. The hotel offers the perfect ambience while you indulge in biscuits and gravy, scrambled eggs and sausage at the free Hot Breakfast, mingle at the free 5:30 Kickback and snack on the free popcorn and soda.

The rest of the hotel doesn’t cut any corners. The guestrooms feature Flat Panel LCD TV's, comfortable beds and free wireless Internet throughout the hotel.  All rooms will have microwaves and refrigerators. The Drury hotel also offers a relaxing outdoor rooftop pool and indoor pool with multiple whirlpools. Sounds like a pool party in the making so don’t forget to pack your bathing suit!

San Antonio, home to the Alamo, the World Champion San Antonio Spurs and the River Walk, hosts a vibrant mix of culture, cuisine, architecture, moving history and patriotism. The city’s heritage and traditions are rich, as are its modern pleasures. San Antonio’s many attractions include Sea World, the Market Square, Morgan’s Wonderland, Six Flag’s Fiesta Texas, and a historical attraction you’ll always remember… The Alamo! For more information on San Antonio and the areas many other attractions, you can visit San Antonio’s visitors Bureau: www.visitsanantonio.com.

Please make sure to mark your calendar and join us for a memorable time! You can expect more information about booking a room, registration, and conference activities on the 1p36 DSA website: www.1p36dsa.org or the 1p36 DSA Facebook page. Looking forward to connecting with you in the beautiful Lone Star state of Texas!

Beau & Sherry Culvahouse
2013 conference hosts

 

Tuesday
May152012

Early Bird registration has been extended

Due the great early registration numbers, the board of 1p36 DSA has decided to keep the earlybird registration open until May 31st. If you are still needing to register or to find out more information, you can do so at the registration page and if you do so before May 31st you will save $10 per adult. We will be posting more detailed information about speakers and conference schedule very soon.

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