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Welcome to Salt Lake City
Snowbird Ski Resort

The 13th Annual 1p36 Deletion Syndrome Support and Awareness conference will be held in the breathtaking scenery of the Wasatch mountains, at Snowbird Resort, Salt Lake City, Utah on Thursday August 1st through Saturday August 3rd, 2019.

Our annual conference weekend is designed for families, caregivers, support staff looking to find more, and of course….all of our amazing 1p36 deletion syndrome children and adults. The 1p36 DSA conference is a wonderful way to become connected with others who share our 1p36 deletion syndrome  journey, to build relationships, learn from our speakers and professionals, and create a system of emotional support beyond your local community and services. Each year for conference we work hard to cover popular topics and strategies relative to 1p36 deletion syndrome, details and in depth information about this rare chromosome, and find respite within the opportunity to share our lives like it’s very own community for a few days. Attending conference is more than just great information gathering, it’s a chance to not explain or apologize in an environment for being who you are, to connect and embrace each other in this together, to meet new families, to comfort those who need comfort, to find encouragement and strength, and to have an incredible experience to carry you through until our next annual conference!  While we have resources of our own, support we have built around us, our online communities, or whatever else gets you through this very unique life we live as 1p36 Deletion Syndrome Caregivers, nothing compares to the value that coming together face to face brings.

Snowbird Ski Resort offers a full itinerary of fun for the family, with adventures of every level of participation. We encourage you to visit the resort link for more pictures, activities, scenery, and to fully view all of their amenities, including the pool. There are no off resort activities scheduled during the dates of the conference. The resort offers a grand assortment of food, drink, space to relax and socialize in, and entertainment on site. After the gorgeous drive up the mountain to the resort, feel free to throw your bags in the room and kick your feet up for your stay…...or toss on your sneakers and get outside! If you just want to enjoy the view from inside, we have great hallways and gathering areas within the resort, don’t be afraid to wander and meet new people! Those of you who are returning to conference this year, don’t be afraid to be the new people they meet!  (There are some helpful links below for those who would like to plan on leaving the resort and visiting downtown Salt Lake City.)

The best part of a perfect summer day, is a cozy sweater and good company at night! Temperatures for August summer days at Snowbird average 80-85 degrees and the evenings reach an average of  55-60. Bring something cozy & warm stay toasty in for the evenings!

“Known for the stunning backdrop afforded by the towering Wasatch Mountains – and the endless opportunities for outdoor recreation they provide –Salt Lake offers visitors a uniquely vibrant and dynamic urban experience. As one of North America’s most accessible destinations, Utah’s capital city offers year-round excitement and activities for the entire family, alongside a contemporary edginess and vitality that’s helped the “new” Salt Lake become a renowned culinary destination.”

Kelly Meyer /Jenny & Mike Johnson
2018 Conference Hosts 


Helpful links

*Snowbird is an unincorporated community in Little Cottonwood Canyon in the Wasatch Range of the Rocky Mountains near Salt Lake County, Utah, U.S.

If you plan to stay and visit Salt Lake City off the Snowbird Resort, check out these helpful links:

The Uinta-Wasatch-Cache National Forest (UWCNF) encompasses Utah's Wasatch Mountains adjacent to the state's northern metropolitan area, and the north slope of the High Uintas Wilderness. Containing nearly 2.1 million acres of geological and ecologically-diverse landscapes (including seven protected Designated Wilderness Areas), this collection of forest areas is one of the most frequently visited in the nation — with good reason.

The Wasatch Range is a mountain range that stretches approximately 160 miles from the Utah-Idaho border, south through central Utah in the western United States.

Elevation: 11,929′
Highest point: Mount Nebo
Location: Wasatch National Forest; Little Cottonwood Canyon; Salt Lake County, Utah; United States
Base elevation: 7,760 ft (2,365 m); lowest chairlift; 8,100 feet (2,469 m); main base area
Top elevation: 11,000 ft (3,353 m)

Destination links 


Places to eat in Salt Lake City (located at the Gateway shopping center in downtown SLC)

Public Transportation

For families traveling who need special assistance at the airport