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1p36 Deletion Support & Awareness

 

1p36 DSA is a non profit 501 (c) 3 organization that is composed

        primarily of parents and caregivers of individuals affected by                  1p36 Deletion Syndrome.

 

                                                                                                              Our Mission is to help individuals affected by chromosome
1p36 abnormalities overcome the obstacles they face to be
able to lead healthy, happy and productive lives.

What is 1p36 Deletion Syndrome?

 

1p36 Deletion Syndrome is a chromosome disorder that is characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every 5,000 to 10,000 births though many individuals still go undiagnosed. 1p36 Deletion Syndrome is the most common chromosome deletion. Learn More
 Pepsi Refresh Challenge

Vote for 1p36 Deletion Support & Awareness in the August Pepsi Refresh Contest

Each month Pepsi holds a contest for grants to charitable organizations around the US.  Winners are determined through a popular vote on refresheverything.com.  Voting takes place for the period of a month and after that the winner is announced.

In August, 1p36 Deletion Support & Awareness is in the running for a $50,000 grant from Pepsi, but we need your help to win.  The public can vote once each day during the month and at the end of the month the winner will be announced. We need your help in making sure the word gets out to everyone to vote.  Don't forget to visit refresheverything.com, create an account and vote for 1p36 DSA every day in August.  We'll share the progress as the month goes on.

1p36 DSA Ranked Top-Rated by Great Nonprofits

1p36 DSA is a top-rated Health Nonprofit on GreatNonprofits. During June, over 50,000 people visited the GreatNonprofits site to read and write reviews about 278 nonprofits improving the health of our communities. During the coming weeks, 1p36 DSA will be promoted as a top-rated organization on GreatNonprofits, Guidestar and beyond.  GreatNonprofits is the leading developer of tools that allow people to find, review and share information about great nonprofits.  To read or post a review of 1p36 DSA, CLICK HERE