2012 1p36 Calendars are back by popular demand!

Please note ordering deadlines below so you won't miss out!

Each calendar is $20 with all profit from the calendar going to 1p36 Deletion Support & Awareness. 

The calendar is spiral bound, 8 1/2" x 11" when closed and 11"x17" when open.  Every month features 6 photos of beautiful individuals with 1p36 Deletion Syndrome.

Click Here to Order.  (*If outside the US or Canada, see below)

Calendars will printed and shipped in one batch to avoid unneeded costs. 

     

Deadline for Orders:January 18, 2012

    Estimated Ship Date:  January 27, 2012

If you would prefer to order by check, please make the check out to 1p36 Deletion Support & Awareness.  (No Cash Please)  Mail to 1p36 Deletion Support & Awareness, Attn: Karen Bess, 48 Cornfield Lane, Warwick NY 10990 Include a note regarding how many calendars you are ordering and the address where you would like them sent.  Please try to get your check out before the ordering deadline.

*Shipping outside the US?  Yes we can!   However, there will be an additional charge to cover the cost of shipping, so please email c.daggett@1p36dsa.org before placing your order.  Include your address and how many calendars you are ordering.  The additional shipping cost will be calculated and emailed to you so that you can include that amount in your payment

Happy Holidays from 1p36 DSA!

A Big Win and a Big Thank You!

A Big Win and a Big Thank You!

A heartfelt thank you to everyone who voted and worked to get votes in the recent Chase Community Giving program.  Because of you, 1p36 Deletion Support & Awareness won $25,000!  It is the largest donation/grant that 1p36 DSA has recieved to date.  The money will go a long way in helping children and adults affected by 1p36 Deletion Syndrome.

We finished the contest at 85th place with 1,493 votes, well within the top 100 charities who will share in over 3 million dollars of grant money.  

1p36 DSA's mission is to help individuals with 1p36 Deletion Syndrome by providing support and education to families and caregivers and by working to increase awareness of the syndrome.  Winning the grant from Chase means some ideas on how to achieve our mission will become a reality.

We'll be asking you to give us input in the next couple of months about what things you would like 1p36 DSA to be doing to work toward its mission.  But you don't have to wait for us to ask!  If you have an idea or a question, please email us at info@1p36dsa.org.  We may not be able to implement every suggestion we get but we would love to hear from you!

So thank you to Chase for this giving us this opportunity to obtain a grant. And, thank you to all our wonderful supporters for making sure that we got it!  We did it!

Votes, Calendars and Deadlines..Oh My!

Time is flying by!  Thanksgiving is next week and Christmas is just around the corner.  We want to make sure that a couple very important deadlines don't whoosh past without you knowing.

Deadline #1

Voting ends on November 22nd (thats next Tuesday!) in Chase Community Giving on Facebook.  That means we have less than five days to make sure that 1p36 DSA is in the top 100 Charities to win part of over 3 million dollars.  We need all the votes we can get.  If 1p36 DSA is in the top 100, we will win $25,000!  So please go follow the link below and vote and encourage your friends and family to vote as well.  The money would go a long way in helping children and adults with 1p36 Deletion Syndrome.

Click here to go to 1p36 DSA's page on Chase Community Giving.

(You'll need to log into your Facebook Account)

Then click "LIKE" Chase Community Giving in the top lefthand corner.

Then click "VOTE & SHARE".    That is all it takes!  

Deadline #2

Monday November 21st is the last day to get your orders in for the  2012 1p36 Deletion Support & Awarness Calendar.  The calendars will be printed after the deadline and shipped around December 5th.  Just in time for Christmas!

The calendar can brighten up any office. Even messy ones!

Each calendar is $20 with all profits going to 1p36 Deletion Support & Awareness.  

The calendar is spiral bound, 8 1/2" x 11" when closed and 11"x17" when open.  Every month features 6 photos of beautiful individuals with 1p36 Deletion Syndrome.

To place your order through Paypal CLICK HERE.  (*Additional cost of orders outside the US, please see below.) 

If you would prefer to order by check, please make the check out to 1p36 Deletion Support & Awareness.  (No Cash Please)  Mail to 1p36 Deletion Support & Awareness, Attn: Karen Bess, 48 Cornfield Lane, Warwick NY 10990 Include a note regarding how many calendars you are ordering and the address where you would like them sent.  The check must be recieved by November 21st.

*There will be an additional charge for shipping outside the US so please email c.daggett@1p36dsa.org before placing your order.  Include your address and how many calendars you are ordering.  The additional shipping cost will be calculated and emailed to you so that you can include that amount in your payment.

Help 1p36 Deletion Support & Awareness win up to $250,000 from Chase Community Giving

Help 1p36 Deletion Support & Awareness win up to $250,000 from Chase Community Giving

1p36 Deletion Support & Awareness needs your help! We are on a quest to win an award ranging from $25,000 to $250,000 through Chase Community Giving. Here are the basics: the Top 100 eligible organizations with the most votes will share $3.0256 million—the top charity will win $250,000, and the remaining 99 charities can earn anywhere from $25,000 to $100,000.

Now that we’ve got your attention,  it’s time to start generating buzz for 1p36 Deletion Support & Awareness—and time to show the world why our organization is worthy.. And to gather the most votes, we need to get the message out to our friends, family, and supporters, but also the broader community of people in your city, state and region.

Voting runs from Tuesday, November 8^th through Tuesday, November 22^nd. Unlike the Pepsi Refresh Everything fundraiser we tried last year, you can only vote once. So it is very important that we really get the word out to everyone you know. All voting is done on Facebook through the Chase Community giving App. You will need to accept the terms of the app and then get voting. You can find our voting page by going to http://bit.ly/lAmtmb or you can search for 1p36 from the Chase Giving Page. If you have any problems please email me at k.shirtcliff@1p36dsa.org.

One effective and easy way to get the message out is through the media. A simple mention in the pages of your local newspaper or on the airwaves of your local radio or TV stations, or community blog can potentially generate real results and get us closer to winning. If you need help drafting a press release please contact us, we have sample drafts available. You can spread the word to people you know through Facebook, Twitter, and if you write a blog. If you have children who are old enough to have a Facebook account, get them involved. Have them spread the word with their Facebook friends. Print out a flyer they can take to school to get their classmates to vote. Involve your kid’s special ed. teachers and therapists. There are hundreds of ways to get others involved, these are just a few. During this campaign we will post updates to the 1p36 DSA Facebook page as well as the Facebook support group. If you think of a great way to get more people to vote, please let us know.