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1p36 Deletion Syndrome Family Blogs

Below is a list of blogs that different family members have created about their loved ones with 1p36 Deletion Syndrome. As an organization, we do not support or endorse any particular treatment, medication or therapy found within these blogs. We list these blogs so that other families and caregivers can get an insight into the lives of those living with 1p36 Deletion Syndrome. If you have a child with 1p36 Deletion Syndrome and have a blog that you would like included in this list, please contact us at And don't forget the official 1p36 Deletion Support & Awareness Blog.

Evie-Anne's Adventures

Carter & 1p36 Deletion Syndrome

Our Kiddo

Zoe's 1p36 Blog

Heaven Sent

Cows, Kids and Caboodle

Every Day Miracles


Below is a List of Blogs that are not currently being updated

My life, Hi i'm Tim (translated from German by Google)

Astrid Forslin (translated from Swedish by Google)

Taylors adventures with 1p36

Alayna: Our little 1p36 angel who inspires this blog

Uisneach and 1p36

The Ins and Outs of 1p36 parenting

Growing up Aiden

Lexi's life with 1p36 

Adventures in raising a disabled child

God gave us you

A chronicle of Aaron's journey with 1p36 Deletion Syndrome

The "perfect" gift

Sophie A journey in progress 

Little miss pretty

Farnsworth Family

Samuel Bartlett

Our Precious 1p36 Miracle