If you have a loved one affected by 1p36 deletion syndrome, we’re here to help

1p36 deletion syndrome occurs in approximately 1 in 5,000 to 10,000 live births and 1p36 Deletion Support & Awareness is honored to currently serve hundreds of families affected by this rare genetic disorder.

We strive to reach the thousands more who live without a diagnosis and/or are unaware of support available to them. If you or someone you know would benefit from our support services, please let us know!