1p36 DSA Leadership

1p36 Deletion Support & Awareness (DSA) operates under the diligent guidance of its Board of Trustees. These dedicated individuals ensure that 1p36 DSA remains steadfast in its mission, effectively managing its activities and affairs to support those affected by 1p36 deletion syndrome.

  • Ken Shirtcliff

    President

  • Jennifer Winiecki

    Secretary

  • Karen Bess

    Treasurer

  • Doug Cope

    Board Member

  • Rachel Aest

    Board Member

  • Julie Rivera

    Board Member