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What is 1p36 Deletion Syndrome?


1p36 Deletion Syndrome is a chromosome disorder that can be characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every 5,000 to 10,000 births though many individuals still go undiagnosed. Though many people have never heard of 1p36 Deletion Syndrome, it is the one of the most common chromosome deletions. Learn More


Calling all friends and supporters of 1p36 Deletion Support & Awareness!

1p36 DSA didn’t win the Pepsi Grant in August but the good news is that we were in the top 100 so we are back in the race in September.  Your help is desperately needed to get 1p36 DSA into the top 10 to win $50,000!  Your mission, and we hope you accept, is to vote three ways every day.  Voting is easy and fast.  Here is a refresher on the three ways to vote every day for 1p36 DSA:

2. Text 101439 to PEPSI (73774)

 Time to vote and spread the word troops!  Lets go!

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